Seek Family Support
Dane: It seems to be harder to tie my shoe. To do a lot of things and to hang on to things. My hands are constantly going numb, cold. Just feel upset stomach all the time and exhausted. I'm really exhausted. Going back to different family members that haven't been involved, they're telling me the same stuff that I had learned when I was younger, and they're asking me the same questions that I had asked. So, getting people educated, on this more, is helping, I think.
Daryel: There has been times when I have looked at people that don't have this disease and I say "Why me?" But then in the same moments, I look and I had three fantastic role models. My father, my uncle, they never gave up. Nobody should give up. You should hold your head and keep going. Be proud. Stand up and do it.