Taking the next steps after diagnosis
When diagnosed with hereditary ATTR (hATTR) amyloidosis, it’s important to know that you’re not alone. Along with various resources, your friends, family, and doctors are available to help you manage your diagnosis.
"Lynn has been such an important part of my life, before hATTR amyloidosis and since. My wife was relentless in helping me get everything worked out. She’s my biggest advocate."
Build your support system
After diagnosis, there may be times that you need help from loved ones. The following steps can help you create a support network:
Discussing your diagnosis of hATTR amyloidosis with your family can help them better understand what you’re going through, making it easier for them to find opportunities to help you in your everyday life, and helping them to know more about their own health.
Help your caregiver help you
A caregiver is someone who helps you manage the symptoms and effects of hATTR amyloidosis. While this can require lifestyle changes and adjustments, there are resources and information available for them.
Find a support group
Support groups can provide invaluable insight into life after diagnosis and to better understand the disease. By meeting other patients and hearing their experiences, you can learn tips for managing daily activities, talking with doctors, and fostering positive change.
Search for a group near you:
Manage your stress
After being diagnosed with hATTR amyloidosis, it’s important to work with your caregiver and doctor to manage stress you may experience. There are many different techniques for managing stress, including:
- Talking with loved ones
- Light activity
- Participating in hobbies
Discuss options with your doctor
Talk with your doctor about any concerns or additional symptoms you might be experiencing, and to understand their recommended course of action.
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For loved ones who would like more information about the role of a caregiver
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Find opportunities to learn more about hATTR amyloidosis