The resources below can help you connect with other people affected by hereditary ATTR (hATTR) amyloidosis and learn more about the condition.


Educational Resources

Introduction to hATTR Amyloidosis

An introductory brochure to learn about hATTR amyloidosis

A Closer Look at hATTR Amyloidosis

A detailed overview of hATTR amyloidosis

Caregiver Brochure

A guide with information and tips for those taking care of their loved ones

Family Resources

Family Discussion Guide

Tips for starting the conversation with your family and a list of resources for further education

Family Health Tree

A tool to help map your family history

Family History Book

A powerful story about one family's battle with hATTR amyloidosis over the course of four generations

Doctor Discussion Resources

Doctor Discussion Guide

Information and tips for talking to your doctor about hATTR amyloidosis

Doctor Fact Sheet

Information that you can provide to your doctor to help educate about hATTR amyloidosis


Information and Support Groups

Alnylam Act® logo

Alnylam Pharmaceuticals is sponsoring no-charge, third-party genetic testing and counseling for individuals who may carry gene mutations known to be associated with hATTR amyloidosis.

Genetic testing and counseling may help to:

  • Identify risk of disease for patients and their family members
  • Shorten the time to diagnosis and prevent misdiagnoses
  • Help patients consider clinical trials
  • Provide information about support resources such as patient advocacy organizations

While Alnylam provides financial support for this program, tests and services are performed by independent third parties. Healthcare professionals must confirm that patients meet certain criteria to use the program. Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient identifiable information. Alnylam receives contact information for healthcare professionals who use this program. Genetic testing is available in the U.S. and Canada. Genetic counseling is only available in the U.S. Healthcare professionals who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use or support any Alnylam product.

Learn more »

Patient Stories