The resources below can help you connect with other people affected by hereditary ATTR (hATTR) amyloidosis and learn more about the condition.
Tips for starting the conversation with your family and a list of resources for further education
Doctor Discussion Resources
Information and Support Groups
Alnylam Pharmaceuticals is sponsoring no-charge, third-party genetic testing and counseling for individuals who may carry gene mutations known to be associated with hATTR amyloidosis.
Genetic testing and counseling may help to:
- Identify risk of disease for patients and their family members
- Shorten the time to diagnosis and prevent misdiagnoses
- Help patients consider clinical trials
- Provide information about support resources such as patient advocacy organizations
While Alnylam provides financial support for this program, tests and services are performed by independent third parties. Healthcare professionals must confirm that patients meet certain criteria to use the program. Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient identifiable information. Alnylam receives contact information for healthcare professionals who use this program. Genetic testing is available in the U.S. and Canada. Genetic counseling is only available in the U.S. Healthcare professionals who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use or support any Alnylam product.