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CeCe’s Tipping Point: Overcoming Misdiagnoses




Meet CeCe, living with hATTR amyloidosis.

I kept having different symptoms and kept getting misdiagnosed. My hands are in extreme pain. Now my feet hurt. I’m out of breath. I can barely walk. Working with my doctors, we were searching for the answer. I’d reached my tipping point.

I finally found a doctor who helped piece it all together and tested me for hereditary ATTR (hATTR) amyloidosis. It’s an inherited condition that can affect different parts of the body including your nerves, heart, and digestive system. I tested positive for a gene mutation associated with hATTR amyloidosis. Finally, I had the right diagnosis.

Learn more and become your own advocate so you know your options. Talk to your doctor about how to get tested for hATTR amyloidosis. The sooner you have a diagnosis, the faster you may be able to start managing it.

Learn more about hATTR amyloidosis at